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Patient Advocacy
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Patient Advocacy
Patient Advocacy
19 Sections
114 Lessons
Lifetime
Curriculum
19 Sections
114 Lessons
Lifetime
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Introduction
3 Items
Introduction of organisation background and Patient Advocacy
1.1
Welcome & objectives of this course
1.2
What’s in it for you?
1.3
CMTC-OVM organisation background
What is Patient Advocacy
5 Items
2.1
Main activities
2.2
Holistic approach
2.3
Patient Advocate selection
2.4
Patient Advocate material
2.5
Agreement
Training Patient Advocates
2 Items
3.1
Introduction
3.2
eLearning
Privacy & Security
7 Items
4.1
Introduction
4.2
Storing Personal Data
4.3
Rights of People
4.4
Our ICT Infrastructure
4.5
Privacy Issues
4.6
Practical Tips
4.7
Email
Collaboration
9 Items
5.1
Introduction
5.2
European Reference Networks
5.3
European Patient Advocacy Groups
5.4
Eurordis
5.5
National Organisation for Rare Disorders
5.6
Global Skin
5.7
ISSVA
5.8
EADV
5.9
Other Rare Diseases Organisations
Communication
12 Items
6.1
Introduction
6.2
Contact via website
6.3
Reaction Time
6.4
Dealing with Emotions
6.5
With Patients, Families and Healthcare Professionals
6.6
With Other Patient Advocates
6.7
With the Dutch CMTC-OVM Organisation
6.8
With Other Organisations/Persons
6.9
Email
6.10
Social Media
6.11
Communication Etiquette
6.12
Newsletter
Social Media
14 Items
7.1
Introduction
7.2
Marketing
7.3
Advertising
7.4
Local Campaigns
7.5
Social Media Channels Usage
7.6
Facebook
7.7
Instagram
7.8
LinkedIn
7.9
TikTok
7.10
X (Twitter)
7.11
YouTube
7.12
Hashtags and@-mention
7.13
Campaigns
7.14
Practical Tips
Websites
3 Items
8.1
Introduction
8.2
Website Background
8.3
Your Contribution
CMTC-OVM Events
2 Items
9.1
Family Day
9.2
Members’ Conference
Personal Medical Advice
2 Items
10.1
Introduction
10.2
Sustainable Healthcare
CMTC-OVM Online Conferences & webinars
3 Items
11.1
Introduction
11.2
Online Conferences
11.3
Webinars
CMTC-OVM External Conferences
9 Items
12.1
Introduction
12.2
Preparation
12.3
Booth
12.4
Networking
12.5
Social Media
12.6
Costs
12.7
Pictures and Video
12.8
Sharing Material
12.9
Report
CMTC-OVM Financials
5 Items
13.1
Introduction
13.2
Auditing
13.3
Financial Management
13.4
Subsidy
13.5
Payment Options
CMTC-OVM Organisation Procedures
8 Items
14.1
Introduction
14.2
Transparency
14.3
Member Registration
14.4
Donor Registration
14.5
Invoicing
14.6
WBTR
14.7
UBO
14.8
Reimbursement
Local Events
5 Items
15.1
Introduction
15.2
Type of Events
15.3
Costs
15.4
Sharing and Collecting Material
15.5
Projects
Encouragement Program
3 Items
16.1
Introduction
16.2
How Works Our Encouragement Program
16.3
Why Expense Allowance
Modus Operandi
20 Items
17.1
Introduction
17.2
Action Plan
17.3
Operational Support
17.4
Elevator Pitch
17.5
FAQ’s
17.6
Members Conferences
17.7
Family Days
17.8
PA Training
17.9
Personal Stories
17.10
Webinars
17.11
Projects
17.12
Fundraising
17.13
CMTC-OVM Online Community
17.14
Social Media Actions
17.15
Business Cards
17.16
Brochures and Booklets
17.17
Banners
17.18
Information cards
17.19
Membership Other Organisations
17.20
Conference Participation
Terms and abbreviations
1 Item
18.1
Terms and abbreviations
PA Handbook
1 Item
19.1
PA handbook
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