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Patient Advocacy
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Patient Advocacy
Patient Advocacy
Patient Advocacy
Curriculum
19 Sections
117 Lessons
Lifetime
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Introduction
Introduction of organisation background and Patient Advocacy
3
0.0
Welcome & objectives of this course
0.1
What’s in it for you?
0.2
CMTC-OVM organisation background
What is Patient Advocacy
5
0.0
Main activities
0.1
Holistic approach
0.2
Patient Advocate selection
0.3
Patient Advocate material
0.4
Agreement
Training Patient Advocates
2
1.0
Introduction
1.1
eLearning
Privacy & Security
7
2.0
Introduction
2.1
Storing Personal Data
2.2
Rights of People
2.3
Our ICT Infrastructure
2.4
Privacy Issues
2.5
Practical Tips
2.6
Email
Collaboration
9
3.0
Introduction
3.1
European Reference Networks
3.2
European Patient Advocacy Groups
3.3
Eurordis
3.4
National Organisation for Rare Disorders
3.5
Global Skin
3.6
ISSVA
3.7
EADV
3.8
Other Rare Diseases Organisations
Communication
12
4.0
Introduction
4.1
Contact via website
4.2
Reaction Time
4.3
Dealing with Emotions
4.4
With Patients, Families and Healthcare Professionals
4.5
With Other Patient Advocates
4.6
With the Dutch CMTC-OVM Organisation
4.7
With Other Organisations/Persons
4.8
Email
4.9
Social Media
4.10
Communication Etiquette
4.11
Newsletter
Social Media
14
5.0
Introduction
5.1
Marketing
5.2
Advertising
5.3
Local Campaigns
5.4
Social Media Channels Usage
5.5
Facebook
5.6
Instagram
5.7
LinkedIn
5.8
TikTok
5.9
X (Twitter)
5.10
YouTube
5.11
Hashtags and@-mention
5.12
Campaigns
5.13
Practical Tips
Websites
3
6.0
Introduction
6.1
Website Background
6.2
Your Contribution
CMTC-OVM Events
2
7.0
Family Day
7.1
Members’s Conference
Personal Medical Advice
3
8.0
Introduction
8.1
Sustainable Healthcare
8.2
In Practice
CMTC-OVM Online Conferences & webinars
3
9.0
Introduction
9.1
Online Conferences
9.2
Webinars
CMTC-OVM External Conferences
9
10.0
Introduction
10.1
Preparation
10.2
Booth
10.3
Networking
10.4
Social Media
10.5
Costs
10.6
Pictures and Vedeo
10.7
Sharing Material
10.8
Report
CMTC-OVM Financials
5
11.0
Introduction
11.1
Auditing
11.2
Financial Management
11.3
Subsidy
11.4
Payment Options
CMTC-OVM Organisation Procedures
8
12.0
Introduction
12.1
Transparency
12.2
Member Registration
12.3
Donor Registration
12.4
Invoicing
12.5
WBTR
12.6
UBO
12.7
Reimbursement
Local Events
5
13.0
Introduction
13.1
Type of Events
13.2
Costs
13.3
Sharing and Collecting Material
13.4
Projects
Encouragement Program
3
14.0
Introduction
14.1
How Works Our Encouragement Program
14.2
Why Expense Allowance
Modus Operandi
22
15.0
Introduction
15.1
Action Plan
15.2
Operational Support
15.3
Elevator Pitch
15.4
Meeting Other PA’s
15.5
FAQ’s
15.6
Video & Photo Material
15.7
Members Conferences
15.8
Family Days
15.9
PA Training
15.10
Personal Stories
15.11
Webinars
15.12
Projects
15.13
Fundraising
15.14
CMTC-OVM Online Community
15.15
Social Media Actions
15.16
Business Cards
15.17
Brochures and Booklets
15.18
Banners
15.19
With Compliments Cards
15.20
Membership Other Organisations
15.21
Conference Participation
Terms and abbreviations
1
17.0
Terms and abbreviations
PA Handbook
1
18.0
PA handbook
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